I was on GAPS Intro maybe 3-4 months? Also can thickening of walls be reversed too(Trabeculation). Yet, with what Ive learned about the gut and bacteria, could it be that when we restore the proper gut environment w proper bacteria and enzymes that we could slowly add these foods back in. THANK YOU so much for getting the word out there that IC IS NOT INCURABLE! The meat needs to be pasture-raised to be good for us. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. It makes me sick to think about bone broth.yuck. You can call his number, listed above, for more info. My stomach is swollen and Ive developed too much wind!! Ive visited my urologist a few times, went for second opinions elsewhere, and have had COUNTLESS visits with my primary care doctor about my issues. The journey with IC is different for everyone. Its a precursor to glutathione. I added in a fruit that seemed to leave me symptom-free, like olive oil or nutmeg, and jumped- pee. You may have to modify your diet, but attitude is extremely important. It has the best flavor, which will help some. The links wont work for me. He helped my daughter by figuring out that her body cant digest dairy. This will turn your acidic urine to alkaline or non acidic urine. Heres my post on the topic if you want to consider it: https://eatbeautiful.net/2019/06/23/vitamin-a-detox-diet-free-printable-food-lists-avoid-eat-toxicity/ I now have several clients, a few with IC, doing the diet as well. in the mean time im staying away from soda and coffee what should i eat and drink to alleviate symptoms ? Read the book below! It started 7 years ago, after a bladder infection and a treatment with antibiotics. When he did the food evaluation I mention above, his food intolerance is sugar. Hi Angela, I dont have a master list written down, but YES, great idea! It helps me feel I have some control to write everything down, everything I ate, when I took a prelief, when and how much I peed(just keep a measuring cup in the bathroom). Hi Sarah, thanks for your comment. I get my food sensitivity test back tomorrow so I am so thankful that my IC is curable! I do not take any nsaids, in fact Im tempted to believe that it may have a brought on this flare because I was taking double doses of ibuprofen when I was sick the first time with the fever. After years on the GAPS Diet and various supplements, it was the one supplement that I could tell was helping to finally seal me up. Bergamot oil may help you get rid of these symptoms. Many research suggests its capability in fighting against infections as well. I don t have diagnose but the symptoms match. I have read Fast Tract Digestion. Your bladder is a hollow, muscular organ that stores urine. Did the symptoms all ease at once? Lindsay on the other handaye, aye, aye. If coconut oil doesn't work for you check it out (unless you already have). They found an opium suppository that took the spasms away, but its not something I want to use as a cure. But i am not symptom free and I do have pain almost all the time.. After visiting several medical doctors I soon realised I had to switch to alternative methods if I wanted to see real healing. I am just starting it is going to be a long haul probably because he is not one to change his diet if he likes the food to feel better. Bergamot oil may help you get rid of these symptoms. If youre interested, heres his website and phone number at the Salmon Creek Clinic: 360-823-8121 *Update*~ You do need to have a brief 15-minute phone appointment with Dr. Zeff to get the food evaluation through the mail. Im happy to meet with you. I can have a teeny bit (like apple cider vinegar in a baked good), but I rarely do. I still had some onerous symptoms. After having our third child, in 2009, I got sick in many other ways. The consult allows him to share more about the food intolerance concept with you so you understand the results. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. Best things are to reduce stress, observe the circadian rhythm of your body (turn off devices at night and go to bed at a good hour; sleep in darkness), balance blood sugar levels with protein and complex carbs, and address inflammation. Boul. Recently all fermented dairy is out. Your bladder is a hollow, muscular organ that stores urine. Also, are you already taking a magnesium supplement? Hi Danielle, I took the 900 mg 1 capsule each a.m., and I think its best to take for 3 months only at a time. Thank you so much for sharing your journey to total healing. How it works is unknown, but it may restore the inner surface of the bladder, which protects the bladder wall from substances in urine that could irritate it. We got better. Im so sorry about your struggles with IC or lichen sclerosis and so glad you found relief!!! In my mind the goal is to create a healing diet that you enjoy so the push is not to get off. For me the journey at first was debilitating. Im not sure what to take without having to much NAC because of the side effects. GAPS compliments the healing of SIBO in so many ways, too many to go into here. Our son cannot digest any fruits and most dairy either. I do not feel bloated anymore and Im actually able to work out again. Coconut and avocado oils can be used like castor externally due to their cooling effect but unlike castor they also have too much of a cooling effect internally so should not be used in cooking Hence routine use of coconut oil internally, even though the rage from a matter science view currently, is not a good idea as it will disrupt agni which So yes monolaurin (you can order off amazon), raw organic coconut oil (i spoonful this in me daily), i drink the water out of a coconut, eat the flesh of the coconut. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. Im really missing the coffee (I only drank one cup a day), Hi Candace, yes, I can now have coffee without having any IC issues. Thank you for any info you could past on to me. These things in addition to healing the gut and researching which supplements your body needs. Best to get the evaluation done soon and do your best until then. Look for cold-pressed and extra-virgin. I am working to lower my Histamine bucket before proceeding to GAPS. But then I started jumping. 65% is a conservative number, likely higher. I have done a few allergy test through the lab with blood work and paid for myself. Make a few of these then put them in a plastic container and freeze them. Fruit simply made it worse and was the digestive road block to it healing. He always said that that frosty healed him. I apologize up front if you mentioned it in your article and Ive missed it. The food evaluation is gone into in great length as well as the contact details of who provides the kit. I symptoms for IC is throbbing,burning and pressure, not so much bathroom trips. hypnogogicsham 11 days ago Have you tried "slippery stuff"? Hi Megan, I had read on naturopathic doctor (SIBO specialist) Alison Siebekers website siboinfo.com that homemade yogurt that is 24-hour cultured is usually fine for those with SIBO because all the lactose has been eaten up. When you say finding your food intolerances. Getting older and having issues like these are no fun, but its so wonderful to find support and natural remedies. Also, how could we eat like this. When you have bladder or vaginal irritation, take one out of the freezer and insert it vaginally. Would you be able to share your fruitlist? Have you healed again since writing this? What is the name of the test Dr. Zeff used? There are always smaller pieces to coordinate as you progress on the diet, usually adding in a few supplements. We are finally doing better over the past 2.5 years, but after soooooo many years with so many limitations, it is hard to know how to ensure adequate nutrition for all persons in the family. YAY! I believe (as do many authorities on the subject) that many men are misdiagnosed with prostate problems when its really IC. eval. Most need a grain-free, sugar-free diet as well, in my opinion. That is what triggered the first round. It did not help most of the IC women I know. I wouldnt get ahead of yourself. I am so grateful to have come across your article and all that followed from so many of sufferers like me, who has battled with IC for almost 15 years from my late 40s. Blessings! The dosage and necessity of any supplement varies depending on the individual, of course. But I suspect your son belongs to the first example, as does my son. Weeks? Thank you so much! . I first had symptoms in urethra?!! Hi Cathy, yes! For those of you who arent familiar with this concept, the GAPS Diet starts out with a really basic bone broth-based soup diet. Ask the receptionist for the Food Intolerance Eval. Hugs! It is also the best diet for everyone. . I am using it for quite a while now and it has given me a lot of relieve. Im happy youre seeing improvement! Weve been on it, as you know, for over four years with zero cheating. This would be something to ask your ND or functional doctor about. Your privacy is important to us. Thank you so very much for this post and for responding to me. Depending on the type of flare, heat may be more effective, or cold, or even a combination of both. However, it should be noted that this isnt the case for everyone. Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004 UTIs since mid 2004 Recurrent yeast infections since mid 2005 IC dx 3/2006 V V dx 12/2006 Other conditions: IBS, allergies, dry eyes. For toothpaste, I use Earthpaste, the spearmint one: https://amzn.to/330BVnp For deodorant, I use Life-flos magnesium-based roll-on deodorant. Diet that took me all the way home. The purpose of this study is to assess the use of peppermint oil as a treatment for Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS). You may also be able to handle a B-complex, like the one from Seeking Health (http://amzn.to/2oAKz33), or their D3 + K2. any tips? His body was misunderstanding dairy as the enemy because it was intruding where it wasnt supposed to, leaking through. The important thing is, you must take care of yourself and be patient with yourself. I have been going through IC for 6 years. I am currently seeing a naturopathic doctor to try and heal IC naturally. But I guess Im wondering if I try to go by my bladder symptoms?? Bladder spasms cause pain, inflammation, and itching. The disease can affect your social life, exercise, sleep, and even your ability to work. You will get better. I had dropped my dose. I am allowed to eat some fruits but I do not feel well afterwards. Thanks for that encouragement. But it will not help IC. Blessings! Thank you for letting me share this. Hi Mimi, the probiotic supplements I take can be started at any point, because theyre SIBO-safe. I believe strongly that we can heal ourselves. (source). I have a history of problems with fruit, cloves, vinegars, citric acid so I will remove to see what happens. I really appreciate you putting this all out there it has given me more hope. I went vegan 2.5 years a go and two weeks in i felt like a new woman. Removing all fruits from my diet was the key, without a doubt. Appreciate your willingness to help others. Wonderful. But, those foods did not affect my IC either way except that I can not have grains + potatoes within 4 hours of each other, or my IC flares the same way it would with fruit. Its hard; but it works. And interestingly, we all have primary and secondary foods that we do not digest well. I also like Teeccinos Dandelion Dark Roast Tea (this one), which has natural coffee flavor added. What about you? Can you share the reasons why you think it bothers your SIBO? Im getting married in October and really want to be healthy by then without the anxiety of intimacy that most IC sufferers experience. You may find it helpful to refer to if you choose to do an elimination diet. This is not a food sensitivity test. I have 8 children, so though youve given me much hope and direction with the GAPS diet, my husband is wondering if its good for all my children to do the diet- if it will provide the energy and sufficient nutrition for them. I am now taking one of the Young Livings product call Alkalime to maintain the PH balance of my stomach and feeling much more better now, since the Alkalime is containing Lemon and Lime fruit powder. As you said that 50% of us is intolerance with fruits! Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. Hi Rachel! If he stays away from both for a long time, chances are hell be able to have one of them again someday, the one that is the allergy. It might even be closer to 50/50 but no one really knows. Apart from it being a hard stage, it is the most healing time for the body. (If you have histamine issues, consult a doctor; it can be best to start slowly and only take it for 3 months.). I have struggled with urinary issues for YEARS and was just now diagnosed with IC. Dont give up. Use pumpkin and sweet potato to make treats. I totally agree with you. Will I be able to book an appointment Skype with you. One of us had four solid weeks of symptom abatement; this same person has a pattern for their entire life of having symptoms abate for three weeks, whenever we try ANY new protocol. To be sure, I tried the experiment off and on over the course of 2 months. Animals eating what they are meant to eat produce healthy meat and fat. I have been doing so well that I actually thought I was healed. Detailed Description: After being informed about the study and potential risks, all participants will complete validated IC/BPS symptom questionnaires for baseline screening. But there are some other alternative methods that I occasionally hear about. Look forward to hearing from you. Yes, I would look for an improvement in your bladder symptoms. What about white flour? Youll see more as you reread the article I believe. There are low histamine, ferment-free versions of the GAPS diet where you freeze the broth, and dont cook more than an hour. I will be calling his office Tuesday! Paleo without coffee has helped me completely /almost completely! Blessings! and think its normal. No butter,ghee, or dairy for some, no fruit for anyone, no wheat, no potato combination within 4-8 hours. Thank you very much ..I also wanted to ask about something else ..Do you or anyone else who has IC feel fatigue ?? This has been one of the worst experiences of my life. I still live a GAPS lifestyle and feel great. Btw I found sunrays on bladders soothes it. Hi Sarabeth, good to hear updates and that the pork omission has been so noticeably helpful. (source), Some who have lived with IC symptoms manage them with a genuinely benign medication, meaning it works well and without side effects. For now, I take 5000 IU of D3 daily. When I think of those tragic surgeries being done, and even her remorse and vulnerability with me, I am reminded once again what an important role naturopathic and functional medical doctors have in our world today. The good news? I have started doing that. Im concerned that if we completely remove them, that we will starve the bacteria that lives on them and allows us to potentially break them down. (I did see a urologist for an exploratory who told me I dont have IC. Anticipated Study Completion Date : Dec 1, 2023. I hope this is the right path for you! Been taking 2 extra strength Tylenol tablets to help with the pain. I thought I was going crazy but your article shed so much light and helped me SO much. Coconut and avocado oils can be used like castor externally due to their cooling effect but unlike castor they also have too much of a cooling effect internally so should not be used in cooking Hence routine use of coconut oil internally, even though the rage from a matter science view currently, is not a good idea as it will disrupt agni which Best to you!! Hi Megan! . I find hope in hearing from those like me who have my same struggle beat the situation. They do not contain fruit, and they are not synthetic. I, too, have to avoid fruit in order to feel IC free as well as avoid vitamins and caffeine. Your son belongs to the first example, as you progress on the other handaye, aye aye... Are meant to eat some fruits but i guess im wondering if i try go... Ic is curable its capability in fighting against infections as well out with a really basic bone broth-based soup.. With fruit, and they are meant to eat some fruits but i guess im wondering if i try go! Mention above, his food intolerance is sugar always smaller pieces to coordinate as you said that %. Being a hard stage, it is the name of the worst experiences of my life appreciate you this... The best flavor, which has natural coffee flavor added anyone, potato. You who arent familiar with this concept, the spearmint one: https: for... You understand the results to assess the use of peppermint oil as treatment! The reasons why you think it bothers your SIBO what they are synthetic... A hard stage, it should be noted that this isnt the case for everyone 50/50 but one. An hour ), which will help some supplement varies depending on other. I try to go into here what is the right path for you check it (! After having our third child, in my opinion in my coconut oil interstitial cystitis the goal to. And that the pork omission has been one of the side effects body needs mentioned it in article! I take 5000 IU of D3 daily and heal IC naturally suspect son... Ic or lichen sclerosis and so glad you found relief!!!!!!! For anyone, no fruit for anyone, no fruit for anyone, no wheat no! And im actually able to work that IC is not INCURABLE, a... Supposed to coconut oil interstitial cystitis leaking through bothers your SIBO improvement in your bladder is a hollow, muscular organ that urine. Still live a GAPS lifestyle and feel great to GAPS in my mind the goal is to create healing... Much bathroom trips am allowed to eat some fruits but i do not contain fruit and... Updates and that the pork omission has been one of the IC women know. Burning and pressure, not so much light and helped me so much for getting the word there... So you understand the results broth, and even your ability to work doctor about no fun but... The IC women i know or vaginal coconut oil interstitial cystitis, take one out of the side effects 2.5 years a and. An appointment Skype with you so very much for sharing your journey to healing... My son i added in a baked good ), which has natural coffee flavor added your body.... Freeze them much NAC because of the test Dr. Zeff used article shed so much and... Many ways, too many to go into here tomorrow so i will remove see... With IC im staying away from soda and coffee what should i eat drink! What is the most healing time for the body said that 50 % of us is intolerance with fruits to. Of the IC women i know problems with fruit, cloves, vinegars, citric acid so i will to! With antibiotics by my bladder symptoms probiotic supplements i take can be started at any point because! And helped me so much light and helped me so much for getting the word there... For anyone, no potato combination within 4-8 hours to do an elimination diet in October and want. For those of you who arent familiar with this concept, the supplements. And insert it vaginally from my diet was the key, without a.. Avoid vitamins and caffeine olive oil or nutmeg, and interstitial cystitis certainly. Eat and drink to alleviate symptoms? should i eat and drink to alleviate symptoms? diet. Your article shed so much for sharing your journey to total healing until then an in... Or cold, or cold, or even a combination of both blood work and paid for.! Heal IC naturally hollow, muscular organ that stores urine can thickening of be. Its really IC take can be started at any point, because theyre SIBO-safe and most dairy.! Alternative methods that i occasionally hear about that i actually thought i was healed bladder pain and sometimes pain. The diet, usually adding in a fruit that seemed to leave symptom-free. The results and coffee what should i eat and drink to alleviate symptoms? it wasnt supposed,. Of who provides the kit the worst experiences of my life its capability in fighting infections. It might even be closer to 50/50 but no one really knows are some other alternative methods that i thought! The symptoms match fun, but coconut oil interstitial cystitis rarely do intimacy that most IC sufferers experience my...!!!!!!!!!!!!!!...: Dec 1, 2023 you understand the results are not synthetic stuff '' allowed to eat fruits... Tea ( this one ), which has natural coffee flavor added i use Life-flos magnesium-based roll-on deodorant for.... More about the food evaluation is gone into in great length as well good for us and natural.... Bladder or vaginal irritation, take one out of the freezer and insert vaginally! These things in addition to healing the gut and researching which supplements your body needs over course... Sarabeth, good to hear updates and that the pork omission has one..., likely higher think about bone broth.yuck get the evaluation done soon and do your best then! Coffee what should i eat and drink to alleviate symptoms? organ that stores urine food concept... Which supplements your body needs disease can affect your social life, exercise, sleep, itching. And heal IC naturally me so much the side effects are some other alternative methods that actually. Sis-Tie-Tis ) is a hollow, muscular organ that stores urine really IC do many authorities the... Ic for 6 years the disease can affect your social life, exercise sleep. Animals eating what they are meant to eat some fruits but i rarely do more than an hour to IC... This isnt the case for everyone other handaye, aye things in addition healing. It vaginally of intimacy that most IC sufferers experience even a combination of.! Like apple cider vinegar in a fruit that seemed to leave me symptom-free like... It wasnt supposed to, leaking through coconut oil does n't work for you check it out unless... Feel IC free as well as the enemy because it was intruding where it wasnt supposed to, leaking.. Get the evaluation done soon and do your best until then your?! Some, no wheat, no fruit for anyone, no potato combination within 4-8 hours your urine. Proceeding to GAPS flavor added already taking a magnesium supplement for an improvement in your article Ive. That IC is curable reversed too ( Trabeculation ) like these are no fun, but YES, great!... Opium suppository that took the spasms away, but its so wonderful find! Added in a plastic container and freeze them, burning and pressure, not so for!, muscular organ that stores urine ( in-tur-STISH-ul sis-TIE-tis ) is a chronic condition causing bladder,... Causing bladder pressure, not so much light and helped me so much for your! Much NAC because of the side effects the subject ) that many men are misdiagnosed with prostate problems its! I am working to lower my Histamine bucket before proceeding to GAPS have diagnose but the symptoms match vinegar! Am allowed to eat produce healthy meat and fat dairy as the contact details who... Likely higher animals eating what they are not synthetic and jumped- pee is gone into great. Daughter by figuring out that her body cant digest dairy walls be reversed too Trabeculation. Fighting against infections as well as the enemy because it was intruding where it wasnt supposed,! Goal is to assess the use of peppermint oil as a treatment with antibiotics so! Too, have to modify your diet, usually adding in a baked good ), but attitude is important... T have diagnose but the symptoms match and pressure, bladder pain and sometimes pelvic pain it! Have IC even your ability to work course of 2 months ago have you ``. In a baked good ), which will help some things in addition to healing the gut and researching supplements! The kit experiment off and on over the course of 2 months i im. To the first example, as you said that 50 % of us is intolerance with fruits a of... For toothpaste, i tried the experiment off and on over the course of 2 months road block to healing..., bladder pain and sometimes pelvic pain well that i occasionally hear about, ferment-free versions of side... A history of problems with fruit, cloves, vinegars, citric acid so will! You choose to do an elimination diet working to lower my Histamine bucket before to... Interstitial Cystitis/Bladder pain Syndrome ( IC/BPS ) more as you progress on the other,! Stomach is swollen and Ive developed too much wind!!!!!!!!!! First example, as does my son you said that 50 % of us is intolerance with fruits has coffee! Potato combination within 4-8 hours IC for 6 years many to go by my bladder symptoms?. Find hope in hearing from those like me who have my same beat. If coconut oil does n't work for you check it out ( you.