Provides college scholarships to talented athletes diagnosed with type 1 diabetes. Shes won a Society of Professional Journalists award for outstanding reporting. Rare Diseases . How it works Program offers scholarships to college students affected by gastro-esophageal cancers in their families. Cancers, Ewing's Sarcoma, Childhood Cancer. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. Provides a scholarship to individuals that have been hurt in a car accident (in the Chicago area), or other types of personal injury situations and are struggling to keep up with medical bills and their day to day lives. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. Program awards two educational scholarships to students diagnosed with a bleeding disorder. Award Winning Pharmaceutical Sales Professional *Orphan Drug * Specialty Pharmacy *Neuroscience *Rare Disease *Neurology. Advocating for Patient-Centered, Data-Driven Policy NORD helps drive more effective government policies by elevating the voice of the rare disease community. Scholarships for the Outward Bound intervention and educational programs in the wilderness for at-risk and troubled youth and young adults ages 12-21 years old. Program provides competitive internships to students with apparent and non-apparent disabilities studying science, engineering, mathematics, computer science and some fields of business. An educational scholarship for children of a disabled military parent. Childhood Cancer, Cancers, Child with a parent or sibling who has or had cancer, Cancer - All in a loved one. Awards two to three individuals with neurological disabilities, or the child of that person, for post high school education yearly (once a year). Program provides annual college scholarships to undergraduate students with a childhood diagnosis of Type 1 diabetes. On Feb. 28, the top of Wells Fargo Tower in downtown Roanoke will be illuminated with a show of pink, green, purple, and blue. $3,000 scholarship to an ROTC student in the Air Force option who is attending a university located in the AFCEA Mid-South Region of the United States, including Louisiana, Mississippi, Alabama, and northwest panhandle of Florida. Program offers scholarships to bone marrow, stem cell and cord blood transplant students of all ages as they pursue their educational goals. Provides financial assistance to individuals diagnosed with hemophilia A or B, including those with inhibitors (Factor VII or IX deficiency), or von Willebrand Disease. Program awards a scholarship to student with cancer which resulted in delayed college entry. A scholarship to support homicide survivors and victims of other crimes who are undergoing treatment for PTSD through any recognized service. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. Program awards a scholarship to a blind or visually impaired female undergraduate student studying music. Program provides scholarships to full-time students who have lost a parent. Hemophilia - Inhibitors, Hemophilia, Blood Disorders, Von Willebrand Disease. This site is strictly a news and information website about the disease. Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. Scholarship is for United States students who are for impacted by a hystiocytic disorder. Offers scholarships to students that have physical and/or mental disabilities. Program awards scholarships to individuals who have been diagnosed with cancer, or a critical/life threatening disease/illness and are pursuing their higher education. Scholarships awarded to individuals who have been affected by HIV/AIDS, either by their own diagnosis or that of an immediate family member. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. Financial assistance grants for people under 21 without medical insurance to put towards diagnosis and treatment. Scholarship program supports LGBTQA+ and allies who have demonstrated a commitment to advancing the mission of the LEA and the LGBT movement. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, disability, or . Patients were recruited through the Clinical Analysis and Reporting System (CDARS) using relevant keywords and/or International Classification of Diseases (ICD) codes listed in Additional file 1: Table S1.CDARS is a tool developed by the HK Hospital Authority . Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Scholarship awarded to student seeking higher education who have been affected by cancer, either by their own diagnosis or that of a loved one. Program provides educational scholarships in the amount of $1000 each year to support students young adults who live with the ongoing challenges and complexities of hydrocephalus. Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. Individuals may apply for the 2020 #RAREis Scholarship Fund through RareScholarship.org. Program awards scholarships for self-identifying lesbian, gay, bisexual, and transgender/gender non-conforming high school seniors who are pursuing higher education. Scholarships awarded annually to one male and one female athlete. Childhood Cancer, Parent, Family Member, Loved One With Cancer. Patient Worthy (Podcast) - Discussing Diagnosis and Access With the EveryLife Foundation for Rare Diseases - July 17, 2020 Program provides a scholarship award to a graduating high school senior with a documented learning disability (LD) and/or ADHD who will be enrolled in a full-time bachelors degree program in the fall. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. Program offers financial support to students whose lives have been affected by rheumatoid disease. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder who intends to further his or her education at a college, junior college or vocational/trade school. #RAREis Scholarship Fund The program is currently closed. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. Scholarship funds to partially sponsor visually impaired students ages 12 to 18 years old, who wish to attend Space Camp. Keynote " The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility" Sarah Wicks, JD, MPH. Program awards scholarships for children who've lost a parent to breast cancer. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. The mission of NORD is to improve the health and well-being of people with rare diseases by driving advances in care, research and policy. Educational scholarship is available for students with disabilities that are pursuing undergraduate studies in computer science and related technical fields who demonstrate academic excellence. Programs awards multiple $5000 scholarships to students in communication science master's or doctorate programs. Mary Chapman The fund is open to individuals who have been diagnosed with a rare disease. Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. Scholarship America will manage the scholarship application process, selection process and distribution of funds independent of Horizon Therapeutics input. An educational scholarship for students diagnosed with a brain tumor prior to the age of 18. Program awards scholarships to men and women with hemophilia and an inhibitor seeking higher education. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Program provides a scholarship of up to $500 to students diagnosed with cystic fibrosis. March 15, 2023 - Scholarship Application Window Opens. Program provides scholarships to students with a documented language-based disability. Program provides scholarships to students with sickle cell disease who are pursuing higher education. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. It does not provide medical advice, diagnosis or treatment. Awards will be provided to 32 recipients for the Spring 2021 semester. Provides eligible students scholarship funds toward furthering education through private or public college/university. Program offers scholarships to young adults who have lost a parent or guardian to cancer, pursuing higher education. The National Organization of Rare Diseases catalogs more than 7,000 rare diseases, most of which are genetic in origin. Program awards scholarships to students who have a disability and are enrolled in undergraduate or graduate studies in an accredited college or university. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. A 22 I was able to watch . Mental Disability, Behavioral Disorders, Eating Disorders. An educational scholarship for a surviving spouse or child of a deceased service member from a service-related death or a veteran with a 100% service-connected disability. Program awards scholarship to a student entering college who has been affected by leukemia. An educational scholarship awarded to hearing children of deaf adults to help them pursue their post-secondary education. Provides a scholarship to individuals who have struggled with mental health challenges or substance abuse. You are now leaving the #RAREis Community website. Website: bionews.com This study was a retrospective review of MD patients in HK. $5,000 scholarship to high-achieving students who are disabled and enrolled in a accredited college or high school. Program provides a scholarship to players who have an immediate family member diagnosed with cancer. Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. Program awards scholarships to students who are legally blind pursuing higher education. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Foundation for Rare Diseases. A scholarship for adults with rare diseases in a variety of educational pursuits regardless of treatment status. An educational scholarship for cancer survivors diagnosed at 20 years or younger. Applicants must be Histio Warriors/patients, siblings, or child/grandchild of an adult patient. Program awards scholarships to a high school senior who are patients of Colorado Allergy & Asthma Centers, P.C., for a minimum of one year pursuing higher education. Program awards scholarships for LGBTQ high school seniors who are actively and substantially involved in community service. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. The information in this site does not constitute legal advice. Grants provided for children and adults with Cystic Fibrosis for recreational activities that help with physical as well as social and emotional health. A one time $1,500 dollars scholarship to one outstanding female college student pursuing a STEM degree and who is in active-duty military. Texas Associated Press Broadcasters Scholarship Recipient, 2019-2020 - . Scholarship awards 3 students an individual prize of $3000 to full-time college students diagnosed with low vision. Applicants must accept their award by Friday . Mary graduated from Wayne State University with a degree in journalism. $2,500 Educational scholarship for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Blood Disorders, Cystic Fibrosis, Autism, Hemophilia, Diabetes, Cerebral Palsy, Asperger Syndrome, Dyslexia, Childhood Diseases - Chronic, Attention Disorders, Crohn's Disease, Legg Perthe Disease, Central Auditory Processing Disorder, Bleeding/Clotting Disorders, Lupus, Inflammatory Bowel Disease, Lyme Disease. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Cancers, Cancer - All in a loved one, Mesothelioma. Members of the CTCF community at the Georgia State Capitol in 2020. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Program offers a scholarship to students with a disability attending the University of Utah. Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. Educational scholarship awarded to burn survivors who are former campers of Hoosier Burn Camp pursuing higher education. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. Program awards one-time and recurring scholarships to students who are affected by cancer and are in pursuit of a post secondary education. Our organization is run 100% by volunteers and 100% of the money we raise is used to assist students or brain tumor families during the most difficult time in their lives. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Scholarships for students with learning differences. He received a T-32 NIH Predoctoral Research Fellowship Award (2019/2020), a year-long clinical-translational research training in digestive diseases at the Massachusetts General Hospital, Harvard . Program offers scholarship for those affected with a bleeding disorder pursuing further education in a health related field. Program offers scholarships for individuals with disabilities for the purpose of paying academic expenses for an aviation career. Program awards a scholarship to a college student who has been affected by Mesothelioma or any other cancer, either by their own diagnosis or that of a family member or friend. Scholarship for high school students and those currently enrolled in college, diagnosed with type 1 diabetes. Program awards a scholarship to a person diagnosed with Hemophilia A/B (and symptomatic carriers), Von Willebrand Disease or rare factor deficiencies pursuing higher education. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). Go here to apply. Program awards scholarship to a person with Chronic Inflammatory Demyelinating Polyneuropathy (CIPD), Multiple Sclerosis or Myasthenia Gravis pursuing higher education. Chive Charities - The EveryLife Foundation for Rare Diseases - August 18, 2020. Program provides financial assistance of up to $500 to attend specialty camps for children affected by chronic illnesses. An educational scholarship for a student or whose loved one is diagnosed with epilepsy or another seizure disorder. Cancers, Cancer - All in a loved one, Childhood Cancer. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. A scholarship for young adults who have been affected by cancer and are seeking higher education. Program awards scholarships to transplant candidates, recipients, donors, and their immediate family members each year. Parent, Family Member, Loved One With Cancer, Brain Cancer/Tumors. Provides scholarship awards of up to $1000 to young college bound adults diagnosed with ADHD or other learning disabilities. Scholarship offered to students who have been affected by addiction that are pursuing a medical-related course of study. Von Willebrand Disease or rare factor deficiencies pursuing higher education. Program provides scholarships of up to $1000 to young men and women who are cancer survivors. The fund is to be used to subsidize soccer fees and other team expenses. The fund is open to individuals who have been diagnosed with a rare disease. Program offers awards to students with a parent diagnosed with ALS, continuing their education. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Program offers college scholarship to individuals who are living with vision loss or blindness. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program offers an award to an elementary, middle, or high school student diagnosed with kidney disease who has improved his/her academic or life skills. STUDENT SCHOLARSHIP PROGRAM FAQs Who is eligible for a student scholarship award? The #RAREis Scholarship Fund was established in 2020 to help adults with rare diseases to pursue their dreams through education. The amount available varies year to year. Program provides a financial award of up to $1000 annually to a high school senior with a language-related learning difference pursuing a career in the visual arts field. Help filling out Prescription Assistance Program Applications, Assistance with Medical Transportation Costs, Connect with Retreats, Camps & Recreational Programs, Patient Assistance Program Update Service (PAPUS), Diagnosis Assistance Program Update Service (DAPUS), Patient Assistance Program Administration, Alexander Graham Bell Association for the Deaf and Hard of Hearing, American Association for the Advancement of Science (AAAS), American Association of People with Disabilities (AAPD), American Association on Health and Disability (AAHD), American Council of the Blind, Inc. - National Office (ACB), American Speech-Language-Hearing Foundation (ASLHF), Association for Education and Rehabilitation (AER) of the Blind and Visually Impaired, California Association for Postsecondary Education and Disability (CAPED), Camp Sertoma for Deaf and Hard of Hearing Children, Candlelighters of West Texas and Southern New Mexico, Children's Hemiplegia & Stroke Association (CHASA), Citizens United for Research in Epilepsy (CURE), Council of Citizens with Low Vision International, Cystic Fibrosis Lifestyle Foundation (CFLF), Cystic Fibrosis Scholarship Foundation (CFSF), Daughters of the American Revolution (DAR), Department of Military and Veterans Affairs, Diabetes Scholars Foundation - Beyond Type 1, From Tragedy to Triumph Foundation (FTTTF), Gallaudet University Alumni Association (GUAA), Georgia State Univeristy Disability Services, International Association of Fire Fighters (IAFF), International Essential Tremor Foundation (IETF), Jean Kennedy Smith Arts and Disability Program. 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